Over the course of my healing journey from COVID-19, I joined a number of patient support groups. One of these groups was Body Politic’s online Slack group. Out of this group, a patient-led research collaborative was born, and I’ve recently become involved with this group and the exciting work that they’re doing.

One current project is survey-based and asks the question of whether vaccination can help those like myself who are struggling with lingering symptoms from COVID-19. Some Long COVID patients have spoken out about symptom improvement following vaccination and some preliminary survey data supports this. Our survey aims to follow up on these reports with more in-depth questions to help identify which symptom clusters might improve (or worsen) following vaccination, whether this effect is transient or endures, who might benefit, and which vaccines might be most helpful. This survey was designed by individuals who are struggling themselves with Long COVID– something I think is key to designing perceptive and insightful questions.

We are looking for responses from people who are at least 5 weeks out from having received the second dose of COVID-19 vaccines (or 5 weeks past the only dose in the case of single-shot vaccines like Johnson & Johnson).

We’re looking for responses from everyone who has been vaccinated– whether you’ve had COVID or not, whether you are a COVID long-hauler or were one of the lucky few who recovered without symptoms, we would appreciate your responses to the survey. Your participation will help contribute to better understanding of long COVID. https://patientresearchcovid19.com/.